Learning disabilities and autism

The North East London Learning Disabilities Transformation Programme is working with partners across north east London (Barking & Dagenham, City & Hackney, Havering, Newham, Redbridge, Tower Hamlets and Waltham Forest) to improve the lives of people with learning disabilities and autism who live here.

This page is under development, tells you about what we are doing and how you can be involved, and will have lots of useful information to support people with learning disabilities and autism, their families and the people working with them.

Care (education) and treatment reviews

Care and Treatment Reviews (CTRs) and Care, Education and Treatment Reviews (CETRS) are meetings about children, young people and adults with learning disabilities, autism or both, who are at risk of being admitted to, or are currently in, a specialist mental health or learning disability hospital. They  were introduced in October 2015 as part of the Transforming Care programme led by NHS England.

The purpose of CTRs and CETRs are to improve the care people receive within the community and avoid unnecessary admissions, and make sure that people are not in hospital for longer than they need to be. Where an admission is felt to be needed the C(E)TR can be used to facilitate a planned admission.

Due to the new rules about coronavirus C(E)TRs may be carried out virtually, using a computer or on the phone, when this is in the best interest of the patient. We have produced the following documents to help you understand what the virtual C(E)TRs will look like:

You will also receive a completed Virtual CTR who’s who document which will help you to understand who will be attending your virtual review.

If you have any questions please contact the NEL Learning Disabilities and Autism Programme team on nel.lda@nhs.net

Learning Disability Mortality Review programme (LeDeR)

The Learning Disability Mortality Review (LeDeR) programme was established in 2016 to reduce the health inequalities experienced by people with a learning disability.  It is known that people with a learning disability have a life expectancy which is on average 19.7 years lower than people without a learning disability, and that they are more likely to experience a number of both physical and mental health conditions.  The LeDeR programme requires a review to be undertaken into every death of a person with a learning disability over the age of 4.  The North East London LeDeR Annual Report 2019/20 sets out findings from the first 100 LeDeR reviews, identifying common themes in the deaths of people with learning disabilities and findings into the quality of care they received at the end of their life. 

UPDATED: 16/09/2020