Palliative Care

In north east London there are around 3,300 children and young people living with a life threatening or life limiting condition and this is increasing year on year.

Through engagement and insight led by Haven House and Richard House Children’s Hospices, the paediatric palliative care needs assessment demonstrates a better understanding of unmet care needs for the children and young people using end of life care services.

By exploring the current experiences of families receiving care and professionals involved in services relating to providing and assessing palliative and end of life care, the research evaluated the effectiveness of provision and identified any key gaps. 

From this engagement a number of key themes were identified along with suggested actions to make improvements. Work will now start to implement recommendations, as well as continuing to have discussions with children, their families and professionals on what more we can take forward together to ensure the best possible experience and care for all our babies, children and young people in north east London. 

You can download the full report or watch the short animation to give you an overview.  

UPDATED: 17/01/2023